Our Lives Matter Too

Our Lives Matter Too

@nostigmaforpain

Followers1.1K
Following406

AKA @PainPtFightBack, registered nurse in a distant life, Pls DM me info re pain patient suicides, heart attacks/strokes during pain flares, etc

Joined on November 17, 2015
@nostigmaforpain Statistics

We looked inside some of the tweets by @nostigmaforpain and found useful information for you.

Inside 100 Tweets

Time between tweets:
10 days
Average replies
12
Average retweets
43
Average likes
102
Tweets with photos
15 / 100
Tweets with videos
0 / 100
Tweets with links
0 / 100
Fun Fact

The USA's 141.8 million accounts represent 27.4% of all Twitter users.

Replying to @ravensspirit68 @Tootwisted40 and 14 others

Ok. So this thread is disconcerting, but not surprising. It’s a prime example of why I took a break from Twitter a while back. Lots of raw emotion, which is totally understandable. We’re in a fight for our lives. But in the midst of the fighting, it’s always a good idea 1/2

1
2
7

Chronic pain is a disease. Chronic pain is more prevalent than cancer, diabetes, and heart disease combined. Chronic pain is real.

18
129
284
Why don't these chronic pain patients "fix" the problem instead of taking pain med. Well this is what "fixing" the problem looks like on the inside of some ppl with #ChronicPain #PatientsAreNotFaking

Why don't these chronic pain patients "fix" the problem instead of taking pain med. Well this is what "fixing" the problem looks like on the inside of some ppl with #ChronicPain #PatientsAreNotFaking

64
100
286

1) I'd like to share this brief story about a patient who's currently taking opioids.

63
131
293

Quoted @tal7291

Unless something has changed, he holds no board certifications in pain management and has completed no pain fellowships to my knowledge. He is a licensed psychiatrist and he is licensed to prescribe buprenorphine.

And thus representing himself as a pain expert would be fraudulent, no?

5
12
51

13/For those eager to make one number go down and not interested in evidence-based patient protection ignore the last 12 tweets. But for the rest, let’s recognize a need for moral & tangible support to protect patients who have long-term pain, who are on opioids.

10
36
108

12/Remember that the FDA issued a warning on this issue, and the CDC issued a clarification of its own Guideline, for which I was incredibly thankful

3
15
53

11/Remember that opioid stoppage in this New York Study was associated with discontinuation of care relationships. https://www.ncbi.nlm.nih.gov/pubmed/31079950 

2
9
35

9/Remember that opioid stoppage from high dose (>120 MME) among Vermont Medicaid patients was typically fast and often followed by emergency department visits:

3
10
39

8/This is either the 3rd study of 2019 to signal real-world reasons for concern about opioid stoppage as it typically occurs in practice, even though the case is compelling to me that expertly-conducted taper will, for some patients, prove quite helpful https://www.ncbi.nlm.nih.gov/pubmed/28715848 

2
7
32

7/The @uw author team makes this nice point: If clinicians harbor concerns about addiction in their pain patients on opioids, then rapid referral to medication treatment is crucial, and their clinic now offers that service. Every clinic should do that, I think

2
9
58

6/Among persons discontinued from opioids, 45% were no longer seen in the clinic. It is hard to make patients safe if you never see them.

1
13
68

5/The authors properly state that the "red flags" that led docs to stop opioids often indicate risks that could have led to death, independent of opioids stopping. We can’t assume stoppage “caused death”. AND: neither can we say stoppage “made patient safer”

2
12
45
4/This was a sick, vulnerable patient group. 21% (119 of 572) of patients died during follow-up, 4% of overdose. Overdose death was 3-fold higher for discontinued patients (4.9% of the discontinued, 1.8% of the not-discontinued). All 17 ODs had a provider-initiated stoppage.

4/This was a sick, vulnerable patient group. 21% (119 of 572) of patients died during follow-up, 4% of overdose. Overdose death was 3-fold higher for discontinued patients (4.9% of the discontinued, 1.8% of the not-discontinued). All 17 ODs had a provider-initiated stoppage.

3/Of 572 opioid patients, 60.1% discontinued. Among reasons for stopping, more were provider-initiated & common reasons were: unexpected urine tox results, missed appointments, diagnosed substance use or mental health disorder & others. Things that do worry us about safety!

3/Of 572 opioid patients, 60.1% discontinued. Among reasons for stopping, more were provider-initiated & common reasons were: unexpected urine tox results, missed appointments, diagnosed substance use or mental health disorder & others. Things that do worry us about safety!

2/Experts at @uw analyzed patients on opioids as of May 2010, in a safety-net clinic that started its opioid safety efforts in 2010. They had a registry of opioid recipients, & tracked who went off. Here’s the article link:

1
11
34

1/Let me share my view on the 3rd study of 2019 showing pain patients are not always safer after opioid stoppage, under real world conditions. A 3-fold increase in overdose death draws my eye. Don’t jump to conclusions, but let's study what was found

14
134
236

People with pain are too often stigmatized in the health care system and in society, which can lead to delayed diagnosis or misdiagnosis, bias in treatment, and decreased effectiveness of care. #PainAwarenessMonth

22
104
226

Replying to @headdock @BostonPainCare

Yes, I pull PMP every month and UDS every month. Why recommend only quarterly? Doc’s job is to constantly assess risk/ benefit. IMHO, I don’t see these three as credible authorities on how to run my pain practice.

2
3
31

If a presidential candidate stepped up to advocate for #pain patients would you vote for them? Please retweet this 5 day poll. With a million 'Yes' answers it might get someone's attention.

22
109
86
Next Page